Cette étude analyse la pertinence et l'efficacité du questionnaire EORTC QLQ-GINET21 pour mesurer et évaluer la qualité de vie de 253 patients atteints de tumeurs neuroendocrines gastrointestinales

Validation of the EORTC QLQ-GINET21 questionnaire for assessing quality of life of patients with gastrointestinal neuroendocrine tumours

Yadegarfar, G. ; Friend, L. ; Jones, L. ; Plum, L. M. ; Ardill, J. ; Taal, B. ; Larsson, G. ; Jeziorski, K. ; Kwekkeboom, D. ; Ramage, J. K.

Background:Quality of life is an important end point in clinical trials, yet there are few quality of life questionnaires for neuroendocrine tumours. Methods: This international multicentre validation study assesses the QLQ-GINET21 Quality of Life Questionnaire in 253 patients with gastrointestinal neuroendocrine tumours. All patients were requested to complete two quality of life questionnaires – the EORTC Core Quality of Life questionnaire (QLQ-C30) and the QLQ-GINET21 – at baseline, and at 3 [...]

Menée en Finlande par questionnaire auprès de 74 participants, cette étude analyse les caractéristiques des patients atteints de cancer qui choisissent internet comme support principal d'aide psychosociale et de source d'informations sur la maladie

Motives of cancer patients for using the internet to seek social support

Yli-Uotila, T. ; Rantanen, A. ; Suominen, T.

The purpose of the study was to describe why Finnish cancer patients choose the internet as a source of social support. The data were collected in May 2010, using an online questionnaire with open-ended questions, through four discussion forums on the websites of the non-profit Cancer Society of Finland. Seventy-four adult patients with cancer participated. The data were analysed using inductive content analysis. The mean age of the participants was 53 years and they were predominantly women. [...]

Menée à Taïwan auprès de 537 patients atteints de cancer, cette étude cas-témoins analyse l'efficacité de consultations nutritionnelles à la sortie de l'hôpital sur leur état de santé

Effects of an intervention on nutrition consultation for cancer patients

Tu, M. Y. ; Chien, T. W. ; Lin, H. P. ; Liu, M. Y.

We assessed whether cancer patients given a nutritional consultation by dietitians when discharged from the hospital experienced more health benefits than those not given a nutritional consultation. The McNemar test and the general linear model were used to examine the effect of nutrition intervention. A bubble chart was plotted to show the comparison between cancer groups. A total of 537 cancer patients discharged from a 1200-bed medical centre in Taiwan in 2011 were randomly divided into [...]

Menée en Allemagne auprès de patients atteints de cancer et suivis en ambulatoire, cette étude évalue l'efficacité d'une intervention de thérapie par l'art pour soulager leur détresse psychologique et les aider à faire face à la maladie

An art therapy intervention for cancer patients in the ambulant aftercare – results from a non-randomised controlled study

Geue, K. ; Richter, R. ; Buttstädt, M. ; Brähler, E. ; Singer, S.

Art therapy in psycho-oncology is gaining increasing importance, but systematic evaluations of its effects are rare. The aim of this study is to investigate the effects of an art therapy intervention for cancer patients in ambulant aftercare on psychological distress and coping. The intervention consisted of 22 sessions. At three points of measurement (t1: before intervention, t2: following intervention, t3: 6 months after t2), participants responded to questionnaires (Freiburg Questionnaire on [...]

Menée en Espagne auprès de 111 participantes, cette étude prospective évalue l'efficicacité d'un outil "QuickPIPER" permettant d'évaluer rapidement la fatigue de survivantes d'un cancer du sein

Psychometric properties of the QuickPIPER: a shortened version of the PIPER Fatigue scale

Cuesta-Vargas, A. I. ; Férnandez-Lao, C. ; Cantarero-Villanueva, I. ; Castro-Sánchez, A. M. ; Fernández-de-las Peñas, C. ; Polley, M. J. ; Arroyo-Morales, M.

This paper proposes ‘QuickPIPER’, a 15-item, validated one-dimensional model representing cancer-related fatigue, based on factor analysis testing of the Piper Fatigue Scale-revised (R-PFS). One hundred and eleven breast cancer survivors participated in this prospective, observational study of the QuickPIPER validation. Participants completed the R-PFS and the Profile of Mood States (POMS) Fatigue and Vigor subscales. The questionnaires were tested concurrently before and after a multimodal [...]

Cet article présente les projections, pour l'année 2013, des chiffres d'incidence des cancers et de mortalité aux Etats-Unis

Cancer statistics, 2013

Siegel, Rebecca ; Naishadham, Deepa ; Jemal, Ahmedin

Each year, the American Cancer Society estimates the numbers of new cancer cases and deaths expected in the United States in the current year and compiles the most recent data on cancer incidence, mortality, and survival based on incidence data from the National Cancer Institute, the Centers for Disease Control and Prevention, and the North American Association of Central Cancer Registries and mortality data from the National Center for Health Statistics. A total of 1,660,290 new cancer cases [...]

A partir des données des registres serbes des cancers, cette étude analyse l'évolution de l'incidence de cancer ainsi que la mortalité, sur la période 1999-2009

Cancer incidence and mortality in Serbia 1999--2009

Mihajlovi, Jovan ; Pechlivanoglou, Petros ; Miladinov-Mikov, Marica ; ivkovi, Sneana ; Postma, Maarten

BACKGROUND:Despite the increase in cancer incidence in the last years in Serbia, no nation-wide, population-based cancer epidemiology data have been reported. In this study cancer incidence and mortality rates for Serbia are presented using nation-wide data from two population-based cancer registries. These rates are additionally compared to European and global cancer epidemiology estimates. Finally, predictions on Serbian cancer incidence and mortality rates are provided.METHODS:Cancer [...]

A partir des données d'une cohorte française incluant 387 691 patients atteints de tumeurs solides entre 1989 et 2004, cette étude analyse l'évolution de la survie nette à 5 ans et à 10 ans

Unbiased estimates of long-term net survival of solid cancers in France

Jooste, Valérie ; Grosclaude, Pascale ; Remontet, Laurent ; Launoy, Guy ; Baldi, Isabelle ; Molinié, Florence ; Arveux, Patrick ; Bossard, Nadine ; Bouvier, Anne-Marie ; Colonna, Marc ; the French Network of Cancer, Registries

In cancer studies, net survival (observed if cancer was the only cause of death) is a useful indicator but survival estimation at 5 years is insufficient for planning healthcare needs. We estimated the net survivals at 5 and 10 years in a cohort of 387,961 patients who had solid tumors between 1989 and 2004 and were followed-up until January 1, 2008. The cases were actively followed-up. Net survival was estimated with the unbiased Pohar-Perme method. The standardized net survival used the [...]

Menée en Suède, cette étude de cohorte incluant 6 320 ramoneurs évalue l'évolution de l'incidence de cancer lié à une exposition professionnelle spécifique, sur la période 1958-2006

Cancer Incidence in a Cohort of Swedish Chimney Sweeps, 1958–2006

Hogstedt, Christer ; Jansson, Catarina ; Hugosson, Marcus ; Tinnerberg, Håkan ; Gustavsson, Per

Objectives. We examined cancer incidence in an expanded cohort of Swedish chimney sweeps. Methods. We added male chimney sweep trade union members (1981-2006) to an earlier cohort (employed 1918-1980) and linked them to nationwide registers of cancer, causes of deaths, and total population. The total cohort (n=6320) was followed from 1958 through 2006. We estimated standardized incidence ratios (SIRs) using the male Swedish population as reference. We estimated exposure as years of employment [...]

A partir des données du registre suédois des cancers, cette étude incluant 9 306 patients atteints d'un cancer d'origine primitive inconnue analyse la survie des patients en fonction de la localisation des métastases

Site-specific survival rates for cancer of unknown primary according to location of metastases

Hemminki, Kari ; Riihimäki, Matias ; Sundquist, Kristina ; Hemminki, Akseli

Cancer of unknown primary (CUP) is diagnosed at the metastatic stage and despite extensive diagnostic work-up the primary tumor often remains unidentified. Limited population-based survival data are available for metastatic location and none are available that link the location with the cause of death, which might give clues about the tissue-of-origin. A total of 9,306 CUP patients with extranodal metastases of adenocarcinoma and undifferentiated histology were identified from the Swedish [...]

A partir de données portant sur 33 985 patients de 94 pays à faibles ou moyens revenus, cette étude analyse les disparités géographiques en termes d'âge au diagnostic et de survie des patients atteints d'une leucémie myéloïde chronique

Regional variations in age at diagnosis and overall survival among patients with chronic myeloid leukemia from low and middle income countries

Mendizabal, Adam M. ; Garcia-Gonzalez, Pat ; Levine, Paul H.

The epidemiology of chronic myeloid leukemia (CML) in low and middle income countries is limited. As a result, we analyzed a contemporary cohort of patients from low and middle income countries treated with Imatinib through The Glivec® International Patient Assistance Program (GIPAP). Generalized estimating equations (GEE) and Kaplan–Meier estimation were utilized to test for regional variations in age at diagnosis and overall survival among 33,985 patients from 94 countries. Patients [...]

Menée auprès de 326 participantes, cette étude américaine analyse les symptômes et les morbidités de survivantes à long terme d'un cancer du sein, en fonction de leur orientation sexuelle

Long-term breast cancer survivors’ symptoms and morbidity: differences by sexual orientation?

Boehmer, Ulrike ; Glickman, Mark ; Winter, Michael ; Clark, MelissaA

Because little is known about morbidity and symptoms among sexual minority women with breast cancer, that is, lesbian or bisexual-identified women, and women with a preference for a woman partner, we examined differences by sexual orientation in long-term survivors’ symptoms and morbidity, considering arm morbidity, systemic therapy side effects, hypertension, and number of comorbidities. Methods : From a state cancer registry, we recruited 257 heterosexual and 69 sexual minority women (SMW) [...]

A partir d'une analyse de la littérature, cet article britannique présente et analyse les problématiques du rôle paternel chez les hommes atteints de cancer

Fatherhood and cancer: a commentary on the literature

O'Neill, C. ; McCaughan, E. ; Semple, C. ; Ryan, A.

When a parent is diagnosed with cancer it may create a multitude of concerns and worries, which can be enormously challenging. Despite the increase in research pertaining to parental cancer, there is a paucity of knowledge addressing the impact of cancer on fathers. Fathers' roles are evolving, becoming increasingly diverse and multidimensional. This paper aims to uncover some issues that may be relevant for fathers with cancer. A cancer diagnosis may not solely impact on a man's identity but [...]

Cette étude en population suédoise (105 736 cas et 528 658 témoins) évalue le risque de suicide chez des hommes atteints d'un cancer de la prostate à faible risque

Risk of suicide in men with low-risk prostate cancer

Carlsson, Sigrid ; Sandin, Fredrik ; Fall, Katja ; Lambe, Mats ; Adolfsson, Jan ; Stattin, Pär ; Bill-Axelson, Anna

Risk of suicide is increased among men with prostate cancer. We investigated this association among men with low-risk cancer, usually detected by prostate specific antigen (PSA)-testing. Relative risk (RR) of suicide was calculated by use of Poisson regression analysis within the Prostate Cancer data Base Sweden (PCBaSe) 2.0, a nation-wide, population-based database, comparing 105,736 men diagnosed with prostate cancer between 1997–2009 to 528,658 matched prostate cancer-free men. During the [...]

Menée par entretiens dans différents pays européens (France, Allemagne, Espagne, Italie, Pologne), cette étude analyse les besoins et les attentes des patients atteints d'un cancer de la prostate en termes d'accès à l'information et de participation à la prise de décision thérapeutique

Access to information and expectations of treatment decisions for prostate cancer patients – results of a European survey

Tombal, B. ; Baskin-Bey, E. ; Schulman, C.

We surveyed patients in France, Germany, Italy, Spain and Poland to examine information requirements and expectations of patients with prostate cancer. Patients were identified via their healthcare teams or via existing databases and interviewed by telephone, or in face-to-face interviews (Italy). Survey questions were either multiple choice or rank-based, and additional information was available to assist patient comprehension. Overall, 80% of patients received information about prostate [...]