Caregiver Exclusion in the Age of COVID: Fighting Cancer With Half the Team

Ce dossier présente un ensemble d'articles concernant la prise en charge des cancers durant la crise sanitaire liée au COVID-19

Journal of Clinical Oncology, sous presse, 2021, article en libre accès

Résumé en anglais

In modern oncology practice, best care frequently requires patients to manage appointments and follow recommendations given by a multidisciplinary team of medical, surgical, and radiation oncologists as well as pain management experts and proceduralists who have separate offices and records systems. Patients with cancer may also receive advice from spiritual advisors, legal and financial experts, and case managers. Interpreting and following all these recommendations can overwhelm a well patient and prove even more troublesome to those with diminished executive functioning from disease or treatment. For many years, oncologists have advised patients to bring a caregiver to their appointments who can act as a second set of ears. Some medical visits, particularly restaging visits, can be emotionally and cognitively overwhelming for patients. A proactive caregiver who takes notes and asks questions can help a patient recollect the facts afterward. In addition, many patients depend on their caregiver to accurately disseminate their medical history, to consolidate information from multiple providers, and to track and administer medications. Moreover, involved caregivers not only assist the patient but can also facilitate providers' ability to understand patient needs and limitations.